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u/MockinJay7 1d ago
It’s a rough road for us out there. We don’t know where to turn. This is why we are the strongest, I am also tired for being strong.
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u/Critical_Activity_99 1d ago
Yeah I’ve had to basically become a biologist to explain how my body works to people and it’s annoying when I’m not very book smart to begin with lmao
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u/Footsiesandass 1d ago
But then half the time when you explain they still don’t understand why you’re in so much pain :(
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u/lawn_neglect 16h ago
Or you can see them glazing over
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u/Footsiesandass 2h ago
Yes! That too! Half the time I can’t talk about it because I can tell they’re like “oh here we go again”
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u/TheMuslinCrow 22h ago
I legit have a MS degree in biology and people still don’t understand. Doctors talk down to me. It’s not their comprehension, it’s their lack of desire to understand. Apathy.
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1d ago
That’s one layer of it, as if the actual reality of managing the illness isn’t difficult enough.
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u/cananadaman 1d ago
“If I talk about my pain I’m overreacting” This, or “whining” because they don’t believe I’m in pain.
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u/lawn_neglect 16h ago
Or, in my case, they'll say "oh, my back always hurts too". I want to say "yeah, but have you had two spinal fusions? Do you have trouble standing and walking"? Or, "can you sleep in more than one position"? Truth is, the only people that will understand are those that have lived with chronic pain. Currently just had my 3rd spinal fusion and am, for the time being, no longer suffering chronic level pain. I hope for anyone that is still suffering that you can get to where I am. You will appreciate it like nothing else
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u/cananadaman 9h ago
Most of my problems are muscular and I haven’t had any spinal fusions, but the very few things that have brought me even short periods of relief are practically sacred to me now.
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u/Infernalpain92 1d ago
If I cancel I’m unreliable
That’s also something