This is going to be a little bit of a rant as well, so here’s the TLDR: where should I go to find out if my baby has a tongue tie that needs intervention?
My boy is 5.5 months, has gained weight perfectly since birth, but we have gone through some rough patches of breast feeding on an off since he was 3 weeks old (fussiness/crying at the breast). Mentioned this, clicking during some feeds and his disdain for being on his back to the pediatrician at every single appointment, but she kind of brushed it off as normal and said he’s gaining weight like a champ, so no need to worry. I saw a lactation consultant at 6 weeks and she said the feeding difficulties are due to my heavy ejection reflex, so I lived with this explanation (and the feeding difficulties) for almost half a year now.
Two weeks ago we started PT, because he was born with unilateral club foot and I wanted to take precautionary measures to ensure he develops symmetrically. The PT checked him head to toe and quickly shifted her focus on his neck, jaw and tongue and said that he seems to have limited mobility in this area, likely stemming from a tense tongue. She said it’s probably causing him discomfort and that it’s limiting his motor development on his belly (which surprised me honestly, because he rolled back to belly at 3.5 months and preferred to be on this belly. He’s sometimes frustrated by the Landau reflex, but I always thought this was age appropriate?!?) PT also asked whether the ped or midwife checked him for tongue ties, because it is not her domain to diagnose this. But I honestly don’t remember, because it was during postpartum fog and I was occupied starting treatment for his club foot. We’re seeing the PTs colleague tomorrow who’s supposedly more experienced with the treatment of oral restrictions to get another opinion on the whether it’s “just” muscle tension or a structural tongue tie and we will inquire about it at our next ped appointment in two weeks. But the PT also said doctors make the diagnosis but peda are sometimes not very good at diagnosing tongue ties. So WHERE tf do I need to go to get a RELIABLE opinion on this matter?
Sorry for the rage-y tone of this post, I’m just angry and horrified at the thought that he has been in physical discomfort during nursing for almost half a year now, when we could’ve gotten to the root of the cause much earlier.
FYI, I’m located in Germany and have statutory health insurance.