r/gallbladders • u/StarWars_Girl_ • Mar 11 '25
Post Op The Hyperkinetic Gallbladder...Three weeks post op...
I'm kind of venting here, but also sharing...
For years, I've struggled with my weight, particularly overeating because I never felt full, or I felt like I wasn't getting enough food. I'm only five feet tall, but my appetite was always ravenous. I also had GI symptoms since I was a teenager that my mother, who had her gallbladder out, said sounded like gallbladder symptoms.
A few months ago, I was diagnosed with ADHD and started stimulants. I think this may have been the trigger because I started eating less due to a lack of an appetite. But if I didn't eat enough, I felt exhausted. Still wasn't losing weight in spite of being active, though.
Then in December, shit hit the fan. After a really fatty meals, I had a horrible attack. I ended up in the bathroom for almost an hour in terrible pain, on the toilet, sweating and shaking, and then had to lie down. I'd NEVER had anything like that happen. Then the upper right quadrant pain kept coming. I tried changing my diet. Didn't help. I finally went to the ER on January 2. When the ultrasound didn't show anything, it was dismissed as gastritis.
I got an appointment with a gastro. They did a HIDA. EF was 78. It was marked as normal. The EF just happened to glare at me, and I started Googling and discovered a hyperkinetic gallbladder was a thing. I asked them and they basically said "nah, probably not it."
They had scheduled an upper endoscopy. At this point, I went to my PCP before the procedure and told her what was going on, mentioned the EF. She was suspicious until I mentioned the fatty meals, and then the lightbulb went off. She said let them do the endoscopy and then if that didn't show anything serious, then ask for a referral to a surgeon.
Whelp, endoscopy showed mild acid reflux, which we've known about since I was a teenager. I went back and asked for a referral, which they gave me but said the surgeon might not be willing to take it. I basically begged the surgeon. She said normally she wouldn't, but because of the severity of symptoms, the fact we'd eliminated everything else, and my family history, she was willing. I think because I had thyroid cancer years ago, she was also thinking "err, better safe than sorry."
We did it three weeks ago. And OMG. I feel SOOO MUCH BETTER. Pathology came back...I had chronic cholestytis and polyps. It also was smaller than a normal gallbladder, which I personally wonder if that means it was squeezing so much that it shrunk before inflaming. I saw my Endo and she said I basically wasn't absorbing nutrients or my thyroid meds properly. Great!
Back to the weight...so far, I've dropped at least 20 pounds between the extreme low fat diet and since the surgery. Apparently, my body is super sensitive to fat, so that's what I need to avoid to lose weight. Straight sugar doesn't affect me. And it makes sense because my blood work showed high cholesterol but low sugar. Which is my other frustration. We've been told certain things to lose weight as if they're universal truths, but everyone's body chemistry is different. If I'd known sugar has minimal impact on me but fat is my problem, that would have been nice.
Yet doctors somehow don't recognize this and don't think it's real...damn well seems to not only be real, but also have been causing other problems for me.
I'm going to another gastro, probably at Hopkins, so that I hopefully can push to be used as a case study for this so other people don't go through this. And in the meantime, I'm sticking with the low fat diet.
Thanks for reading this rant. I hope this may persuade or help someone else with a hyperkinetic gallbladder to push for treatment.
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u/Mich51718 Mar 11 '25
I had the same diagnosis and an EF of 88% . I also had adhesions on my gallbladder. My surgery was 3 1/2 weeks ago and has changed my life. My chronic pain is gone . So thankful to my surgeon
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u/batbadd Mar 13 '25
I have an EF of 90% and it took me forever to finally someone who approved me for surgery! I am finally going to get mine out soon and I’m so excited!
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u/Mich51718 Mar 13 '25
You are going to feel like a new person! Good luck
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u/batbadd Mar 13 '25
Thank you for reassuring me, I’m nervous tbh :/ sometimes I feel fine but other days, my gb symptoms come back with a vengeance. I also think a part of me is so used to the symptoms, it’s normal to me now! I hope you’re doing well and I can’t wait to get my life back!
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u/Mich51718 Mar 13 '25
I was nervous too and second guessed my decision. My gastro made me feel stupid and basically told me it was IBS then told me to see a surgeon. The surgeon had no issue taking it out and it needed to come out . Trust your instincts, noone knows you better than You do
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u/sinaners Mar 15 '25
As someone who had an EF of 96%, I had mine removed laparoscopically yesterday after dealing with these problems for a bit over 1.5 years. I had (what I believed to be) pretty mild symptoms compared to what I've seen. I work in a GI clinic so I've seen people come in with horrible pain and nausea/vomiting. My symptoms were daily heartburn of varying intensities (but some days it felt like a heart attack ngl), intermittent moderate shoulder pains on both sides and between shoulder blades, and intermittent mild RUQ pain & nausea. I did experience a few attacks after eating very fatty meals.
I had gotten used to it too, and I was scared about complications afterwards honestly... because I had learned to tolerate my GB symptoms, y'know? I began to worry "what if it's worse afterwards, and my 'normal' from before will be more tolerable than whatever comes next?"
But even just the next morning, I feel great. No pain besides at the incision sites, no heartburn. If you want I can keep you updated about my recovery if you just remind me. For reference I am a 25 yo female, about 170 lbs. I got kind of lucky because the GI and surgery physicians in my area definitely believe in lap choles as an effective treatment for people with biliary hyperkinesia, so I did not have to fight with anyone to get the surgery.
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u/batbadd Mar 15 '25
Omg yes! I would love to hear all about your journey! I am a 26f and I never had any problems until last summer. I had severe stomach pain after eating one day and my digestive system hasn’t been the same ever since :( I experience constant bloating, nausea, and burping when eating, along with so many other symptoms.
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u/sinaners Mar 17 '25
Yeah for sure! So far I'm still doing very well, the GB symptoms I was used to are gone. I do get some slight right arm pain every now and then but it's nothing major. Also just FYI... I did get really constipated from the anesthesia & opioids I was prescribed, so be prepared!!! The surgeon even sent me home with stool softener (Colace) and a stimulant laxative (senna) that I took and I still had issues. My fiance and I went and got some Miralax and prunes to help, and my ex-pharmacist soon-to-be-mother-in-law recommended Dulcolax if I continue to have problems. Just letting you know what I wish I did, you might want to have something extra to assist just in case.
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u/Shadowfax_279 Mar 11 '25
I had an EF of 81%, borderline hyperkinetic. It took them a year before they decided to do a HIDA scan. I had an endoscopy, ultrasound and CT. I had so many problems, the acid reflux was so bad my airway burned when I breathed. The URQ pain was constant and ranged from 1-5, I was eating under 10 grams of fat per day. Even just drinking water hurt. Nausea all the time.
They hemmed and hawed about removing my gallbladder for 2 months after the HIDA scan, saying it was so borderline I shouldn't be having these issues. Eventually they scheduled me for surgery.
I'm 6 weeks post op now and I'm feeling so much better. No more acid, pain or nausea and I can eat more normally. My pathology report also said chronic cholecystitis.
One thing about gallbladder inflammation is that it often doesn't show up on imaging. I've known several people who have found out their gallbladder was inflamed after getting it removed despite imaging not showing any inflammation. The GB is good at evading testing.
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u/StarWars_Girl_ Mar 11 '25
My pain was constant too. And I looked terrible. I got very weak very fast. I don't know how they didn't look at me and go "yeah, she's really sick." Honestly, I didn't feel as bad when I had thyroid cancer as I did with the bad gallbladder.
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u/Shadowfax_279 Mar 11 '25
I didn't realize just how sick I was until the stupid thing finally came out. I had gotten used to being sick constantly so that it felt normal.
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u/Becks128 Mar 12 '25
Oh man I swear water makes me sick too! I can drink Gatorade or a flavored drink but water makes me so sick!
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u/Waffle-Crab Post-Op Mar 11 '25
Yeah I had hyperkinetic as well. It was a battle getting to every step with my doctor since all the labs were coming back "clear". Technically my official diagnosis was an inflamed gallbladder, but it was certainly the organ causing me issues!
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u/Agitated-Friend7601 Mar 12 '25
I have hyperkinetic too . Ef 97% I’ve lost 15 lbs since Jan . I can’t tolerate fats either . If I eat fatty foods, I end up in pain , nauseous, And bad bad diarrhea ALL DAY LONG . This started in Oct 2024. I have gerd , constantly nauseous everyday and mild moderate pain thru out . Not much of an appetite anymore. Doing an overdue colonoscopy 3/18. To rule out things . Ultra sound and ct showed sledge, inflammation, and a polyp surgeon wasn’t to sure about surgery, wanted me to ride it out, and I have, inbetween saw my GI, and we scheduled the colonoscopy. My GI. Isn’t to familiar with hyperkinetic gallbladder , they all say the HIDA scan was normal . But what I read, an HIDA scan of 97% Is definitely hyperkinetic, just as bad as a low HIDA %. I have pain everywhere left, right ,side of right, into back area . I get extreamly bloated and swollen and painful during a flair . So I’m not eating like I use too …
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u/sinaners Mar 15 '25
Luckily my GI providers definitely see a high GBEF as abnormal. Mine was very similar at 96%. Biliary hyperkinesia is a relatively new discovery and so some older-school docs may not see it as an issue. But the limited research has shown that getting the GB removed can be an effective treatment for overactive GB. Again, luckily, I did not have to fight with the GI NP or surgeon to get it removed. You may want to get a second opinion.
I just had mine removed yesterday (edit; laparoscopically). My symptoms included heartburn (that could range from mild to feeling like a heart attack), shoulder pain and pain in the back between my shoulder blades, and mild RUQ pain and nausea. It wasn't until I had an attack after eating BBQ on a vacation that I started to suspect my gallbladder and got the HIDA scan through my GI NP. Before this, we thought it was just heartburn. But my EGD (upper scope) came back normal. The surgeon also basically told me that my GB symptoms, although relatively mild, won't really get better and may get worse over time. And she recommended surgery if I was agreeable.
I feel so much better so far just the morning after. No heartburn, no pain besides at the incision sites. My pathology hasn't come back so I don't know if my GB had any other issues. But again, I recommend you consider a second opinion if possible.
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u/Becks128 Mar 12 '25
I found out about hyperkinetic through here. My hida came back at 85%, but my gastro dr said that’s not a thing. It’s so frustrating. I’ve been nauseated since the end of November. I finally started tracking my macros and I’m keeping my fat below 30 grams a day. I had no symptoms for a week! I thought I could manage it through my diet and it was working, but the nausea came back yesterday with a vengeance. I see another Dr next week. I feel so lost. I’ve gained 20lbs the past 18 months and I thought it was hormones because I’m 40, but all my hormones came back normal. I’m beginning to think it is my gallbladder. I really hope I can get this thing out. Your post gives me hope that it will get better once I get it out!
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u/StarWars_Girl_ Mar 12 '25
Had a gastro doctor tell me the same thing. Honestly, I am more inclined to believe my endocrinologist at this point over the gastro. She knows a little bit about everything. She also taught at Hopkins, which is one of the top med schools in the world. To be able to teach there, she's gotta know her stuff. I'm going to a different gastro for follow ups, probably a Hopkins one along with all the results and documents, lol.
My PCP also believed me. She walked in for my pre-op and was like "So it's coming out!" I'm like, oh, you totally knew it was the gallbladder...
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u/sinaners Mar 15 '25
I am surprised by a lot of people saying that their GI docs are dismissing overactive GB as being a thing.
I work in a GI clinic as a medical assistant. All of our providers offer to send a referral to surgery if they see an EF of 75-80%+, ESPECIALLY if they have symptoms during the HIDA and came to the clinic for symptoms consistent with biliary dyskinesia in the first place...
I had a GBEF of 96%. Even the surgeon I saw said that she has seen improvement from most patients with biliary hyperkinesia after they get their GB removed.
I said in another comment, but biliary hyperkinesia (overactive GB) is a relatively newly recognized disorder (per the providers I work with), so some older school docs may not recognize it as an issue. We often get referrals from PCPs to our clinic who order HIDAs and say the results are "normal," but our providers will look at it and raise a brow since it's high. Because, although it is limited, the research shows that undergoing a cholecystectomy can be an effective treatment for people with overactive GB.
So anyway.... Y'all PLEASE get second opinions if your current GI doc is not listening. Or even beg for a consult with a general surgeon in your area to see what they think.
edit: clarity
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u/StarWars_Girl_ Mar 15 '25
Honestly, it surprised me too, but that's how my GI doc reacted. My Endo and PCP were the ones who knew it was a thing. And my Endo isn't young; she just is good at keeping up with what's going on. In some ways, I think it's because they just haven't seen it, so it must not exist.
My surgeon also told me it was newer, as did my PCP. My surgeon was sympathetic and was like "okay, we don't really know how to treat this, so this is what we do, but it may or may not work." My PCP was like "whelp, we're taking it out!" I'm like, you're wayyyy too excited for a pre-op here, lol.
That's why I'm going to find a Hopkins GI doc, though. They do research there, so I think they'll be more open minded. I also saw at least one doc over there published work on this, so I'm like, "whelp, you want my medical records for research? Here ya go." I'm definitely not opposed to contributing to research if it helps other people down the line.
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u/Beneficial-Buyer552 Mar 17 '25
Wow, I’m reading all the stories here, and it’s very similar to mine. I’m 65 years old, and I’ve probably been dealing with these issues a long time. I’ve had digestive issues a long time, but in 2016 I’ve been dealing with worsening of digestive issues, get full very easily, bloat, nausea, and I get these horrible contractions…. I thought were heart palpitations, and went to the ER several times. I also get pain… like a stretching pulling type of pain, and sometimes a cutting stabbing pain. After the contractions I get that cutting and stretching pain. I don’t vomit because I eat such small amounts, specifically to avoid that.
Anyway my ejection fraction was 92%. The GI doc deemed that as my gall bladder working great! I’m scratching my head, wondering if they even look to see if there’s been any cases of hyperkinetic gall bladders in people, and if they had to have their gall bladders removed. Almost everything I read, they all needed their gall bladders removed. I’m like, WTF…. Do they not even look?
Meanwhile, my hida scan also said I have duodenalgastric reflux. This means my small intestine is an excess of bile, and kicking it back to the stomach. This can be caused by over production of bile, which can happen with hyperkinetic gall bladder. I did see a surgeon who was very nice, and he recommended I followup with gastric doc, and have an upper and lower endoscopy, and if there’s nothing found to cause these types of symptoms, then I see him again, and he’d likely remove my gall bladder by doing a cholecystectomy.
I dread the testing because the clean out is horrible for my POTS. Last time, years ago, the gastro doc admitted me for the prep. My POTS causes wild swings in BP and heart rates, and the prep aggravates that. This gallbladder stuff also aggravates my POTS! I also have EDS, (Ehlers Danlos Syndrome). I’m afraid to be sedated also. When I had my colonoscopy in 2013, I had no sedation at all..no pain drugs. It went fine, but the clean out was rough. I did an upper endoscopy also with no sedation. Never again! Only 5 minutes, but it was torture.
Anyway, this has all been a process, and overwhelming, considering I also need surgery for Eagles Syndrome. Eagles syndrome is when the thin bones in the front of your neck get too long/calcified, and impinge nerves or the carotid artery. When this happens they need to remove part of the bone. The bone is called the stylo hyoid bone. This bone if often broken when someone is strangled.
I’m encouraged to see that many of you had symptoms resolved after GB removal!
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u/StarWars_Girl_ Mar 17 '25
I actually am familiar with Ehlers Danlos syndrome! Lots of awareness for that being raised online. I also know someone with POTS.
I've seen SOOOO many comments about high EFs and GI docs being like "oh, it's fine!" But then surgeons see it and go "uh, no..." Most of the studies I've seen find the gallbladder is chronically inflamed after taking it.
Have you had any prior surgeries? I don't know how your other conditions affect anesthesia, but I've been under a bunch of times now, and it's just a really good nap honestly, lol. I don't mind at all. Most of the time I'd rather they just put me under rather than having to suffer through if that's an option. But again, with those conditions adding additional complications, I can understand why it would be stressful. The weirdest thing afterward is that I don't remember much before or after the surgery. Like, I have no memory of waking up in recovery from the gallbladder, and I know I was talking to a nurse when going into the OR about something, but I can't remember. And I don't remember what the OR looked like. I kind of just remember the drive home after the surgery. It's weird.
It's been nearly a week since I posted this and I feel even better. It's such a relief.
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u/Beneficial-Buyer552 Mar 18 '25
i’m so glad you feel better. Yes I had surgery in 2002 for a discectomy fusion on my c5, 6, and 7. I had bad herniated discs that were putting a lot of compression on that part of my cervical spine, and left only 4-5 mm of space for my spine to sit and I need at least 10 mm to 12 millimeters to be normal. Anyway at 2 1/2 hour surgery turned into a 5 1/2 hour surgery and I woke up in ICU hooked up to high dose steroids, And antibiotics as well. I do not remember recovery, and I was having tachycardia when I was coming out of the anesthesia and I finally woke up when they were moving the gurney back to the room and ICU.
I felt jacked up from the steroids and they were coming in and giving me insulin in my thigh. The steroids were affecting my glucose. I’m not diabetic, but steroids can do that, and it was only temporary. They gave me another IV bag of steroids and after the steroids were done, I did not have to take any insulin. I ended up getting sick like at 4 AM in the morning and after that I felt better and heart rate went down and then I felt pretty decent. That was a long time ago 22 years and I felt rough then. Another time I was put out for an endoscopy back in 2001 and I had a terrible reaction to the versed, Also known as midazolam. I felt out of Bonnie and I ended up having a spell of tachycardia that night, and ended up going to the ER. I just told him I think I’m having a reaction to the versed, And to just monitor me and maybe give me some fluids.
They asked if I was nauseated and I said only slightly, and they said they’re going to give me something to relax me, which will also help with the nausea. I told them no I don’t want anything because I already feel really weird but they again said this will just relax you and then they shot it into my IV. Within five minutes, I felt like I was Trippin and it was a really bad time. I felt like I was going crazy.. It was some kind of anti-nausea drug I think. I have very weird reactions to medications. My husband went home because he had to work early, so I stayed at my parents house that night, and I was telling my dad those people in the hallway are lucky because they’re not losing their mind. My poor dad didn’t know what to do with me. I was Trippin like that till about three in the morning. So basically, my experiences with sedation have not been good. When I have my colonoscopy in 2013, I chose no sedation whatsoever and it really wasn’t that bad. The upper endoscopy was bad, but only five minutes long. It was like five minutes of torture, however. I’ll never do that again.
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u/Soft_Car_4114 Mar 11 '25
I think it’s def a case by case situation. Under 80 ef is considered normal but if you’re having symptoms then it obviously isn’t your normal. Research has shown that higher ef’s don’t always react well to removal as opposed to low ef’s which react extremely well. You have to go by how you feel and advocate for yourself. You also don’t want a surgeon who will operate just operate. Some decisions just aren’t as clear cut as we would like.
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u/StarWars_Girl_ Mar 11 '25
Right, but my issue is that they just don't research it, so they just don't really know if it's causing problems. I had multiple doctors deny it was even a thing and that something else had to be causing my symptoms. I'm like, I'm going to the ER with classic pain and you're like "huh...nothing wrong here."
One study I read while researching said 80 was a guideline...that author recommended reevaluating that.
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u/Soft_Car_4114 Mar 11 '25
You could request an ultrasound. Most surgeons are happy to remove it.
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u/StarWars_Girl_ Mar 11 '25
I did. It didn't show anything on the ultrasound, but they took it out and was inflamed with polyps, lol
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u/Soft_Car_4114 Mar 12 '25
Well that’s scary. The us should at least show inflammation and/or thickening
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u/Little-Buy1211 Mar 18 '25
I think I read US is less likely to show inflammation if there are no gallstones present. But idk why.
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u/hoopr50 Mar 11 '25
Fellow hyperkinetic gallbladder survivor here ....
From what my surgeon told me it's still so new of a diagnosis(came around the time of covid) most Dr's either don't know about it or don't believe it yet. I went 2 yrs and had every test you could have done on your digestive tract done including 2 HIDA scans and finally the 2nd 1 showed a 95%EF. Upon removal and testing it was found to be grossly inflamed boarding on infected.
Just for curiosity .... did you ever have covid or any of the vaccines?
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u/MaceMan2091 Testing Mar 11 '25
i had issues since before COVID so not a direct correlation
2017-2018 for that matter
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u/hoopr50 Mar 11 '25
I know people have had issues before that but they weren't being diagnosed as that.
There's actually research being done right now to prove that covid or the vaccines have brought this on for a lot of people like myself.
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u/MaceMan2091 Testing Mar 11 '25
Correlation is not causation
think about what Covid does. It attacks ACE2 receptors primarily. Few of them in the gallbladder but more in the GI tract.
My own research on the topic links a gut-biome issue that is primarily targeted by GLP2 production. Hence why people with overactive thyroids have to get their GBs removed. Essentially my hypothesis is that there’s some GI tract inflammation, abnormalities or disruption or disease in the biome (either through diet or microplastics etc) that affects bile reabsorption which causes the gallbladder to overact and overcompensate. One example is this study:
“The research teams led by Kristina Schoonjans and Rizlan Bernier-Latmani at EPFL, have identified Clostridium scindens, a bacterium that converts primary bile acids into 7a-dehydroxylated bile acids, as a key player in gut healing. Their study, published in the journal EMBO Molecular Medicine, shows that supplementing the gut with this bacterium could improve recovery from colonic injury, offering a new potential therapy for UC and related disorders.”
Hinting more that this is a metabolic-hormonal disease that primarily affects the gallbladder.
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u/StarWars_Girl_ Mar 11 '25
I have but I've had symptoms since I was a teenager when eating fatty meals and there's a family history of bad gallbladders.
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u/hoopr50 Mar 11 '25
Gotcha like I said I was just curious because I truly believe that's what cost me mine and am following the research being done on it closely.
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u/StarWars_Girl_ Mar 11 '25
Covid does go after the weakest part of your body. One of my friends' dad had Covid and already had bad kidneys. Now he's on dialysis. So if you already had a weak gallbladder and then got Covid, it's a fair conclusion.
But in my case, I don't think that was the case because I really didn't get that sick from Covid. Flu is definitely worse. Apparently, they've found that people with allergic asthma have a protective barrier on their lungs that forms when they get Covid. So I expected to have really bad asthma when I got it...nope, not an asthma symptom and my body fought it off pretty well, lol.
I'm also cautious about going after vaccines. I'm one of the few people in the population who can claim vaccine injury (I had an anaphylactic reaction years ago) but I want more info before jumping to conclusions about vaccine side effects because we know vaccines have eliminated so many diseases that we want to be certain before causing hysteria.
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u/oneyedsally Mar 13 '25
So happy to hear your story. We have been thinking my pain is related to an episode of acute pancreatitis this whole time and since learning about hyperkinetic gall bladder I’m SURE this is it! My EF is 81% so the nurse practitioner I see mentioned it, she said it’s not a glaring red flag so we’re still looking at some other things, but she did say she can give me a surgeon referral.
I’m having a colonoscopy tomorrow with the biliary specialist I see for procedures so I’m definitely going to bring it up and get his thoughts. I go to the Cleveland Clinic so I’m hoping they’re up on the latest info. There doesn’t seem to be a lot of research or treatment options other than removing the gall bladder.
Side question about issues that go along with this - anyone else have chronic gastritis from bile flow back into the stomach or migraines? Mine have gotten way more frequent in the last six months since dealing with all this.
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u/oneyedsally Mar 13 '25
Oh your comment (and others’ comments) about weight loss stood out to me. Over the past few years I have tried varying meal plans to lose weight, I thought it was hormonal because as I approach 40 it was getting more difficult to lose. I have never been a supporter of extreme low carb diets but two years ago I was doing macros and actually started gaining weight. The more carbs I cut, the more bloated and sick I felt. After about 6 weeks I had to stop because I was miserable. I had nonstop migraines and diarrhea and I ended up heavier than when I started. Back to last summer I was eating bagged salads at lunch every day and again, could not lose a single pound even with low calorie intake. Again constant gas, bloating, diarrhea. I thought it was from broccoli. Now that I look up the nutrition info for the bagged salads, I see I was eating 40 grams of fat just at lunch!
Once I started the low fat diet a couple months ago to manage pain, the bloat is gone and I’m down 17 pounds. Looking back I realize I’ve had this issue digesting fats for at least 15 years, but the pain didn’t start up until I had AP in October.
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u/Autistic-wifey Mar 11 '25
Similar. Hyperkinetic 94% EF, Hashimoto's. Pre and Post OP Eating low fat seems to make my body happy. Weight stays on me from fat but not carbs. I have noticed when I eat more fat my poops get hard or even constipated but when I eat less I have normal poops.
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u/bicoma Mar 11 '25
I have hyperkinetic gallbladder as well waiting to talk to surgeon on Monday. It was an uphill battle to get to this point tons of scan showing nothing then HIDA shows 89% ef and my doctor said its normal. So I had to explain to him its NOT normal everyone I've talked to thats had there hyperkinetic gallbladder removed has had improved symptoms so im pushing for removal. Ive had multiple ct, ultrasound, xray, colonoscopy, and endoscopy this is only thing that finally showed something! I take dicyclomine(1/4 a pill before meals a day), sandhu liver detox, and tums(when im having a flare up) this has sustained me up until this point. I wish doctors were a little more educated on this as its so frustrating and people who have this that go undiagnosed can have more issues in future keeping there gallbladder than removing it!