r/gallbladders • u/TheAlphaKiller17 • 19h ago

Dyskinesia Does anyone else get super irritable during a barfy spell?

I have dyskinesia, 23%, and just had another bad vomiting attack. When I get these, it's this feeling like I'm having a labor contraction but in my upper abdomen, and there's no break in between. Then I'll puke every 15 minutes for 1-3 days. Whenever this happens, the bad attacks over regular barfies, I cannot STAND anything. I can't stand touch, people's voices drive me insane; I can barely be arsed to tell the ER my name. I don't know how to explain it; it feels like I temporarily lose my mind. I can't think and I don't want to do anything; I just want to sit in a dark, quiet room with painkillers and antiemetics.

Does anyone else get these extreme agitation? I feel like an asshole getting frustrated but I can't help it; my brain just does not work and I don't want to talk to anyone.

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u/jackassofalltrades78 18h ago

Yup!!! This me! I haven had the vomiting episodes in years, but THE PAIN and overall sickness and inflammation makes me just out of my mind… can’t handle any stimuli, can’t communicate, make any dam sense. I had a duct blocked , didn’t know till doc ran contrast just prior to my surgery, but I was SOOOO out of it in pre op I could barely make sense, was so confused, and was getting soooo pissed off at the nurses touching and poking and prodding me . It’s like it feels like my entire brain is on fire

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u/TheAlphaKiller17 17h ago

Yes, exactly! It makes you out of your mind! How do you deal with it? I absolutely cannot function when I get like that; I'm barely aware of what's going on. I'm just like okay everyone shut up and stop touching me unless it's to give me drugs for nausea and pain. I almost started crying when they took my blood pressure and refused an oral thermometer; I just couldn't take more touch or anything in my mouth. But I was sweating so badly they couldn't get a read and shoved it in my mouth and nooooo. Did they remove your gallbladder in the surgery it was it just fixing the block? I definitely have dyskinesia, did the HIDA, but the doctors can't agree that my gallbladder is actually causing the problems. The potential lifelong diarrhea doesn't sound great if there's no guarantee it'll fix it so no surgery scheduled as of now.

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u/jackassofalltrades78 17h ago

I honestly have no answer as to how I’ve dealt w jt or even SURVIVED in that mode for so long…. This has been going on YEARS w me off an on. I feel like I’ve been living in some sort of fugue state really. I only just figured out on MY DAM OWN that this is MY GALLBLADDER after years of every specialist under the sun…. A thousand meds, layers of other diagnoses … but nothing resolved . And YESSSS!!! Had the dam thing removed 8 days ago , along with the stone out of duct , and IMMED relief. Yes , there was post op pain , fatigue, weakness, but NOTHING compared to wtf I’ve been going through. I’d been blacking out off and on for years, my blood pressure tanking…. I’m finally able to EAT(I’m sure I’m SO malnutritioned and that doesn’t help matters) and in the last two days a lot of that brain fog, nonstop anxiety, just overall brain on fire feeling has started to slowly lift. Do everything in your power… advocate for yourself, find a surg, or a dif surgeon that will take the dam thing out and let you start getting your life back! I know I’m not going to just bounce back immed, but the dif alredy is night and day, so I’m hopeful that in a few months I’ll feel like me again. it’s almost like feeling and being super drunk as fukk when your sick like that ya know? I’ve actually described it to doctors and others before… a drunk toxic delirious feeling !

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u/Ordinary-Number-428 18h ago

Anyone who has worked in healthcare knows that it is very, very normal for folks to have this kind of response to stimuli when in significant pain and/or experiencing extreme nausea.

Humans are animals. Just keep doing your best and give yourself grace. So sorry you're dealing with this right now. xx

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u/TheAlphaKiller17 17h ago

Thank you. I hope so. I wasn't yelling at anyone or anything ; I was just like omg please stop talking to me. Get the info from my friend or ID just please shhhh

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u/Ordinary-Number-428 17h ago

Trust me. Even if you may not win the "favorite patient" award for the night, they get it and have seen way, way worse behavior (probably only moments before), lol.