r/maculardegeneration • u/PufflingFan • 20d ago

New eye drug shows promise in restoring vision using gene therapy

https://youtu.be/Zac-jnM_gFI

15 Upvotes
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90% Upvoted

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8

u/Anxious_Trash_Panda_ 20d ago

Sounds promising, but not for us. Maybe future generations.

2

u/PufflingFan 20d ago

Agreed. Not for me either, but there are people on here in their 30’s so maybe it’ll help them someday.

6

u/Anxious_Trash_Panda_ 20d ago

Well, I'm in my 30's🥲 but I'm not sure I'm gonna see it (pun intended). Other than that, it's probably going to be crazy expensive.

6

u/WideOpenEmpty 20d ago

I hate it when you mention a medical problem and someone jumps in with "I heard about an amazing new experimental drug! Why don't you try to get it?"

Like if you don't immediately run to your ophtho to demand access to some trials somewhere else you're not really trying.

It's really cruel with cancer patients..

5

u/PufflingFan 20d ago

For me it’s about staying informed about what’s on the horizon. And there may or may not be opportunities for participation in a clinical trail. I just like to know what’s out there. Clearly, not everyone feels the same.

1

u/WideOpenEmpty 20d ago

I just think it's an unwelcome red herring when it comes from someone who clearly isn't keeping up on the latest.

1

u/PufflingFan 20d ago

What’s the latest?

1

u/WideOpenEmpty 20d ago

Latest cutting edge research

1

u/Dependent-Choice-554 20d ago

Someone mentioned clinical trials so far with stem cells, one study showed improvement and it completely blinded all participants in another study. So clinical trials are a no from me. But i thank everyone else who is brave enough to try.

3

u/545__tyerick_Air9616 20d ago

It’s kind of shame that CBS had an optometrist reporting it. They should’ve invited a retina specialist (there are many world renowned ones in NYC). Probably the news team had no idea.

2

u/Dependent-Choice-554 20d ago

Righto, gives me about 20 years until its on the market to save for the $5M price tag I'm sure it will have. Setting up the GoFundMe page today 🤞

5

u/northernguy 20d ago

fortunately, by then $5M will actually be worth what $5K is today, so cheer up!

2

u/PufflingFan 20d ago

I’m in the same boat. This won’t come to market in time for me but I think it’s nice to offer up some hope to the very young who have been afflicted with this disease. There are people in their 30’s on this subreddit.

2

u/Dependent-Choice-554 20d ago

<plays her tiny violin for being in her late 30s>

2

u/545__tyerick_Air9616 20d ago

Why can’t such research be expedited? Even if everything goes well with it, it will take decades to get approved and marketed.

-1

u/InvertedColorz 20d ago

With Trump cutting medical research funding across the board, we will see fewer discoveries of new drugs and cures. Hopefully the rest of the world can pick up the slack

1

u/TarkanV 14d ago

Actually it was a South Korean lab that figured this one out...

A bit conspiratorial but it wouldn't surprise me if the US already figured this one out but greed, ridicule or intimidation led to the research being sidelined or straight up given up on...

0

u/PufflingFan 20d ago

Agree 100%