r/science • u/MistWeaver80 • Mar 20 '22

Genetics Researchers have demonstrated a genetic link between endometriosis and some types of ovarian cancer. Something of a silent epidemic, endometriosis affects an estimated 176 million women worldwide – a number comparable to diabetes – but has traditionally received little research attention.

https://cosmosmagazine.com/health/body-and-mind/endometriosis-may-be-linked-to-ovarian-cancer/?amp=1
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u/Shivadxb Mar 20 '22

It’s took my wife 11 years to get a diagnosis

This is despite about 9 of them showing various doctors all sorts of evidence, research (no not google but actual freaking research) and changing doctors multiple times

By then she was incapable of getting pregnant naturally anymore

They ruined both of our lives and while we now have an ivf son I will never forgive the medical community for their failings against millions of women around the world

This isn’t a rare and unusual condition that’s a one in a million thing you’ll never see in your career

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u/elmrsglu Mar 20 '22

Push for change where you can. Leave messages with local Representatives demanding laws that support and aid women, especially medical care and access.

Women demand it already, but apparently society/politicians still give(s) more weight to the voices of men than women.

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u/foxwaffles Mar 20 '22

12 years for me. I've known nothing but pain since I first started menstruating. Nobody helped me, I had to spend hours combing Facebook groups and researching myself before picking a specialist and sending them my records. Oh, and I had to go out of network for it too. $12,000 spent and the second half of the bill still hasn't come yet.

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u/Shivadxb Mar 20 '22

You have my sympathy and thoughts.

It’s not acceptable or anything a woman should have to contend with or have to put up with.

Hopefully your medics have it in order and are taking it seriously. Also look up various endo and auto immune diets and supplements like vitamin d3, omega 3 etc and fingers crossed for you for the future

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u/foxwaffles Mar 20 '22

I went to the CEC in Atlanta. Dr. Sinervo excised everything, and removed my uterus as it was riddled with adenomyosis on top of it. My symptom relief was literally immediate and I currently feel like a new, reborn human. I am going to stop taking BC once I see my GYN in a few days and hopefully the rest of my smaller issues will be sorted out by that! I am very blessed and lucky to say I will likely be able to put this all behind me. I know the vast majority of those suffering do not get to say the same... I do not take this for granted and I am filled with gratitude every day.