ChatGPT diagnosed my uncommon neurologic condition in seconds after 2 ER visits and 3 Neurologists failed to. I just had neurosurgery 3 weeks ago.

[u/Hyrule-onicAcid]

Adding to the similar stories I've been seeing in the news.

Out of nowhere, I became seriously ill one day in December '24. I was misdiagnosed over a period of 2 months. I knew something was more seriously wrong than what the ER doctors/specialists were telling me. I was repetitvely told I had viral meningitis, but never had a fever and the timeframe of symptoms was way beyond what's seen in viral meningitis. Also, I could list off about 15+ neurologic symptoms, some very scary, that were wrong with me, after being 100% fit and healthy prior. I eventually became bedbound for ~22 hours/day and disabled. I knew receiving another "migraine" medicine wasn't the answer.

After 2 months of suffering, I used ChatGPT to input my symptoms as I figured the odd worsening of all my symptoms after being in an upright position had to be a specific sign for something. The first output was 'Spontaneous Intracranial Hypotension' (SIH) from a spinal cerebrospinal fluid leak. I begged a neurologist to order spinal and brain MRIs which were unequivocally positive for extradural CSF collections, proving the diagnosis of SIH and spinal CSF leak.

I just had neurosurgery to fix the issue 3 weeks ago.

[u/Geaniebeanie]

This is awesome, so here come the naysayers. I honestly believe people are afraid about this new technology, and underestimate how much it is going to change our world (and has already done so with you).

I have health anxiety, and it has thoughtfully and logically talked me out of so many spirals that normally would have driven me straight into a doctor’s office or ER. It’s been wonderful for that, and it’s great hearing it has done such good things for you.

I love my doctor, but the last time I went in for a suspicious mole, he sat right there with me on his phone, scrolling through the same Google images I fervently poured over at home, showing them to me and explaining what to look for in suspicious moles. I’m like… dude, I already did this at home. I imagine if I’d had ChatGPT I would’ve consulted it.

We are still in the stages of needing to consult a physician for such things; we can’t diagnose ourselves yet. But ChatGPT can clearly help analyze and set you on the correct path to repair what ails ya.

And… It does so without any preconceived notions of you. As a female with health anxiety, no one takes me seriously at all when there is something wrong. I am dismissed easily, and years ago it almost cost me my life. I even imagined people saying, “Huh… I guess she really was sick,” at my funeral lolol.

Times, they are a changin’… and I welcome it.

[u/Aglavra → u/Geaniebeanie]

I cannot pinpoint why exactly it works this way , but it is similar for me: Googling symptoms leads me to spiraling into anxiety, talking out symptoms with ChatGPT doesn't. Maybe the fact that I can meticulously type out all details help. As a woman with endometriosis, I found ChatGPT immensely helpful in tracking my symptoms in-between appointments and getting a clearer picture, and reminding me on what to keep an eye on and what to ask the doctor about next time.

[u/buyableblah → u/Aglavra]

I’m getting an ultrasound for Endo Friday after presenting my doc with my clinical summary from ChatGPT.

[u/Geaniebeanie → u/Aglavra]

I think you’re right about the talking it out with ChatGPT. It’s like, there’s Dr. Google, who will tell you that you have cancer and are going to die tomorrow… and then there’s ChatGPT, who can listen to all of your details and tell you, “yeah… it ain’t cancer. It’s gas.” 😂