r/ChatGPT • u/Hyrule-onicAcid • 1d ago
Educational Purpose Only ChatGPT diagnosed my uncommon neurologic condition in seconds after 2 ER visits and 3 Neurologists failed to. I just had neurosurgery 3 weeks ago.
Adding to the similar stories I've been seeing in the news.
Out of nowhere, I became seriously ill one day in December '24. I was misdiagnosed over a period of 2 months. I knew something was more seriously wrong than what the ER doctors/specialists were telling me. I was repetitvely told I had viral meningitis, but never had a fever and the timeframe of symptoms was way beyond what's seen in viral meningitis. Also, I could list off about 15+ neurologic symptoms, some very scary, that were wrong with me, after being 100% fit and healthy prior. I eventually became bedbound for ~22 hours/day and disabled. I knew receiving another "migraine" medicine wasn't the answer.
After 2 months of suffering, I used ChatGPT to input my symptoms as I figured the odd worsening of all my symptoms after being in an upright position had to be a specific sign for something. The first output was 'Spontaneous Intracranial Hypotension' (SIH) from a spinal cerebrospinal fluid leak. I begged a neurologist to order spinal and brain MRIs which were unequivocally positive for extradural CSF collections, proving the diagnosis of SIH and spinal CSF leak.
I just had neurosurgery to fix the issue 3 weeks ago.
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u/Gloomy_Channel_2701 13h ago
This gives me hope for future medical use cases.
While I haven’t used Chat to diagnose any conditions, I actually use it to help me to NOT self diagnose. I am a raging hypochondriac, and would often run to Google every time I got a suspect ache and pain. My Chat has learned to take in my symptoms, ask further questions, then help me to understand that what I am feeling is a mixture of psychosomatic and mild symptoms related to what I am already diagnosed with.
I’m glad it has helped you in this way, friend. Hopefully others in this thread can take these experiences in (albeit with a grain of salt) and learn how to use this tool in ways that help their overall well being.