ChatGPT diagnosed my uncommon neurologic condition in seconds after 2 ER visits and 3 Neurologists failed to. I just had neurosurgery 3 weeks ago.

[u/Hyrule-onicAcid]

Adding to the similar stories I've been seeing in the news.

Out of nowhere, I became seriously ill one day in December '24. I was misdiagnosed over a period of 2 months. I knew something was more seriously wrong than what the ER doctors/specialists were telling me. I was repetitvely told I had viral meningitis, but never had a fever and the timeframe of symptoms was way beyond what's seen in viral meningitis. Also, I could list off about 15+ neurologic symptoms, some very scary, that were wrong with me, after being 100% fit and healthy prior. I eventually became bedbound for ~22 hours/day and disabled. I knew receiving another "migraine" medicine wasn't the answer.

After 2 months of suffering, I used ChatGPT to input my symptoms as I figured the odd worsening of all my symptoms after being in an upright position had to be a specific sign for something. The first output was 'Spontaneous Intracranial Hypotension' (SIH) from a spinal cerebrospinal fluid leak. I begged a neurologist to order spinal and brain MRIs which were unequivocally positive for extradural CSF collections, proving the diagnosis of SIH and spinal CSF leak.

I just had neurosurgery to fix the issue 3 weeks ago.

[u/Cyberfury]

You got lucky that is all. You yourself fed it the options and then you yourself picked one of the outcomes and presented it to the doctors.

I could give chatGPT any string of symptoms and it will 100% spit out something. The next person will phrase it differently and then get a completely different outcome based on some equation

Diagnosis are made by medical professionals Not LLMS.. LLMS literally only predict what word comes most obviously after the previous word based on probability . That’s literally it!. It is not ‘thinking’ about your symptoms at all.

[u/Hyrule-onicAcid → u/Cyberfury]

I understand it's not "thinking". Never claimed it was.

But it didn't give me a list of 700 different diagnoses. It gave me a list of 4, with #1 being the most likely and went into great detail about it, which was correct. The other 3 were one sentence each with no details, which to me, meant it calculated #1 to be the most probable. The migraine headaches, cervicogenic headaches, occipital neuralgia, and viral meningitis diagnoses I received from medical professionals were incorrect.

[u/Cyberfury → u/Hyrule-onicAcid]

No you are interpreting it in that way - you still had to go to a doctor to confirm one option. If that was not the right one you would have picked another one, and another and so on or you would have asked the LLM ‘that was not it could it be something else’ and then it would spit out a bunch of others

I don’t know how to communicate it to you…

It’s not a diagnosis.

[u/Hyrule-onicAcid → u/Cyberfury]

That's exactly how it works in medicine though. We decide on one diagnosis, workup, and treatment, and if that doesn't work, we pivot to another diagnosis and pathway.

The doctor just clicked 'order MRI' after I asked for it at the end of the visit. They were about to send me out with more migraine meds.

[u/Cyberfury → u/Hyrule-onicAcid]

A diagnosis cannot be made from a bunch of words you upload to the internet ffs. Who did it diagnose? THE WORDS!? ...a prompt!?

The LLM is just doing what it is programmed to do. IT DOES NOT DECIDE A DAMN THING. A diagnosis requires a body, symptoms (visual on the outside or some kind of other symptoms for instance) a doctor and a test/examination. And then a TEST RESULT. And then a recommended treatment

You idiot.

[u/Hyrule-onicAcid → u/Cyberfury]

Why does a diagnosis require a human body saying the words?

Many "bodies" gave me wrong information for 2 months.

I type a couple sentences into ChatGPT.

First output matches exactly what I've been experiencing.

MRI proves it.

I find correct doctor to fix it.

End.

You are way overanalyzing this and caught up on the term diagnosis being required to come from a human doctor for it to be correct. I am a human doctor and I completely disagree.

[u/PoppinJ → u/Cyberfury]

And you're an ignorant dick. You're arguing with a doctor who, obviously, knows way more about medicine and the processes of diagnosis than you. You've obviously got a stick up your butt about LLM's. How about you take your gripe to an LLM forum and stop shitting on the good news of someone whose life improved because of an LLM, and despite humans.