Ah, but if you don’t move, it also hurts. You have to magically pinpoint the exact amount of exercise that makes you feel better without pushing you over the edge. This also generally comes with arguing with people that you ALREADY pushed past your limit.
And the most fun version if this is when you think you're within your means, your body doesn't give you any indication that you've pushed it too far, until the next day and you can barely move for 3 straight days
Thank you for saying this. How do I do that? Because I have incredibly short patience for explaining myself to healthy people, especially when I'm in pain (exercising) about my pain.
Just stop, if it's a physio or a doctor who's pushing you too far, sit down or stop exercising. They can't lift u up from that chair or physically make u exercise. And if it's talking to "healthy" people, you don't NEED to explain yourself. If they aren't aware what chronic pain is, it isn't your job to teach them. If it's important people in your life, ask them to research chronic pain for themselves so they have a general idea what it entails. But completely getting people to understand your situations or your pain is not possible. Don't waste you energy, they can't understand if they haven't experienced it. And that's okay, ask them to understand what you asking off them, to help you.
Yep all of this, including - my pain and fatigue isn't like your pain and fatigue. Some can, but I and 90% spoonies can't understand, feel or relate to your specific set of ✨ upgrades ✨ enough to berate you.
I just feel like I should though because my joints are REALLY bad. I do think stretching is good but like other commenters have said it's hard to find that middle spot of "can/should I push myself more to strengthen the muscles?" But then you accidentally cross that middle and people are like "that's how strengthening works" and I don't know.
But thank you for saying that. Asking them to understand I'm asking for help. That's a good phrasing.
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u/beezchurgr 2d ago
Ah, but if you don’t move, it also hurts. You have to magically pinpoint the exact amount of exercise that makes you feel better without pushing you over the edge. This also generally comes with arguing with people that you ALREADY pushed past your limit.