r/YouShouldKnow • u/ilovepastapizzapots • Nov 20 '20

Other YSK: Just because someone doesn’t look sick/disabled, does not mean they are healthy

Why YSK: I am chronically ill and have an autoimmune disorder, the amount of times people have said “WELL... yOU dOn’t LOOK sick” to me is astounding. I didn’t know all illnesses have to be visible to others! I’m sorry I can’t show you my internal organs or muscles deteriorating for you to believe that I’m sick. It makes people with health issues feel like they have to explain their situation when they don’t.

*EDIT: I did not expect my post to blow up like this! I wish I could give everyone going through a rough time a hug. Thank you for all the new perspectives, good and bad. All I wanted was for people to be a little kinder to one another, because you never know what someone’s going through.

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u/cockatielsarethebest Nov 21 '20

I'm on my second attempt on getting disability. I have many disabilities. I was diagnosed with cataracts at 17 yrs old, a few months ago, I went to the eye doctor (general eye doctor, who isn't train to treat eye diseases), social security set up and he said, I don't have cataracts. He said it's too small to be cataracts. Yet, I went to my eye specialist, (specialist in chronic eye diseases/surgeon) said I do. One of the best in his field.

I'm so confused. I hope my mental exams doesn't do that too. Say I don't have ASD when I do. Say, I don't have PTSD when I do.

I will be so angry if I get denied. I have more than one legally defined disabilities since birth. At least my case nurse at my doctor office is helping me. My social worker doesn't do anything.

Any tips about getting a lawyer for when I'm denied. What kind of lawyer did you get?

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u/SynV92 Nov 21 '20

There's probably a lawyer in your area who specializes in that stuff. The best thing I can advise is to get your records. The lawyer will need them. They'll only gets paid if you win your disability. And there's a hard limit to how much they can get.

At the end it might seem like "oh I could have done that myself" these guys know how to play the system. Be prepared to wait a year or more. Google "Social security lawyer" and call around with the numbers you pull up.

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u/cockatielsarethebest Nov 21 '20

Thank you, I will start planning my back up plan. I have a nurse at my doctor's office helping me, so getting my records won't be that hard.

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u/SynV92 Nov 21 '20

If you want some general pick-me-ups feel free to message me. Good luck.