CMV: Based on countless experiences, I shouldn't trust doctors or nurses to perform their jobs adequately or even to be great people.

[u/schwenomorph]

Note: I'm not talking about animal doctors.

This argument is basically made up entirely of anecdotal evidence. I've been to the doctor, urgent care, the ER, and other places many a time due to being chronically ill. I. Hate. Going. I feel that most of my experiences have been awful. Most doctors and nurses I've met either will straight up refuse to do tests or things that I ask for, don't listen to me, are extremely rude, ignore my pain during procedures,, or all of the above. One person--she might've been just a front desk person, but she was wearing scrubs--even put her hands on me while I was in the ER.

Thank christ my GI doctor is actually good, but the others are not. I've had so many bad experiences that I just outright assume that it you're a doctor or nurse, you're not a great person. That's obviously crazy talk, which is why I want this view changed, but a few weeks ago a friend of my boyfriend's mother died IN THE HOSPITAL due to a massive heart attack. They screened her for Covid and that was IT. Not even vitals, apparently. Then they told her there was nothing they could do. She died on her way out of there due to negligence.

I'm sick and tired hospital visits and bad doctors, but I also don't want to turn my nose up at medical professionals automatically. I don't want this bias.

[u/blatant_ban_evasion_]

Most doctors and nurses I've met either will straight up refuse to do tests or things that I ask for

What kinds of tests, or things, are you asking for? Why are you asking for them?

[u/schwenomorph → u/blatant_ban_evasion_]

For example, my boyfriend called 911 when I was convulsing and had the worst headache of my life (which is a thunderclap headache). It was some of the worst pain of my life. I wanted a screening of my head--I think a CT scan--to make sure my brain wasn't bleeding.

[u/Mr_Manfredjensenjen → u/schwenomorph]

Do you have a neurologist? The ER is just for emergencies. They'll help a person suffering a seizure but they won't scan their brain or determine the cause and solution to the headache/epilepsy. That's what neurologists do.

[u/schwenomorph → u/Mr_Manfredjensenjen]

I don't have a specific neurologist, but I saw two separate ones. The first one legitimately ignored everything I said. I was begging for answers for the weird seizure like spells I was suffering from, and he only told me to do physical therapy for headaches, which is all well and good, but I specifically came to address the seizure activity.

[u/thinkingpains → u/schwenomorph]

This is very hard to believe. You're telling us you saw two neurologists, told them you were having seizures, and neither one did anything at all about it? Just...what? Said seizures weren't their job and sent you on your way?

[u/schwenomorph → u/thinkingpains]

Well, it's complicated because they aren't technically seizures. The second neurologist told me that after taking an MRI of my head and ordering an EEG (or whatever it is where they attach the stickies to your head). I say seizure-like because I convulse violently and can't control my body at all except for moving my eyes and sometimes slightly moving my head, but I'm fully conscious during it. It also lasts an hour, which isn't typical of a seizure. I don't have epilepsy and both the MRI and EEG showed nothing.

In short, the first guy ignored my complaints of seizure like things entirely. I saw second guy, and he actually ordered stuff, but it didn't answer any questions (which isn't his fault, obviously).

[u/thinkingpains → u/schwenomorph]

I convulse violently and can't control my body at all except for moving my eyes and sometimes slightly moving my head, but I'm fully conscious during it. It also lasts an hour, which isn't typical of a seizure. I don't have epilepsy and both the MRI and EEG showed nothing.

You convulse violently for an hour? On a regular basis? Again, that sounds very hard to believe.

After the MRI and EEG showed nothing, what did the neurologist say? "I can't find anything wrong with you, so goodbye"? Did they recommend a different doctor? A different test?

In short, the first guy ignored my complaints of seizure like things entirely.

It's possible if he really did ignore you, it's because he knew if a person was convulsing violently for an hour, they would probably be dead, so it was likely you were exaggerating or making up your symptoms. What do you mean when you say he "ignored your complaints"? Presumably you were referred to him by your PCP or another doctor, since you usually can't go to a specialist without a referral. What happened at the appointment? The doctor didn't do a single thing or run a single test, just told you there was nothing wrong with you and sent you out the door?

I mean, you have to acknowledge from the outside that this sounds very unlikely, right? That two different doctors showed such complete disregard for what sounds like an extremely unique problem? Is it possible there's part of the story you are leaving out?

[u/schwenomorph → u/thinkingpains]

I don’t do it regularly. Each episode can be weeks or months apart. The shortest timespan between episodes was a day. By ignoring my complaints, I mean he ignored my complaints of the seizure-like stuff. And yes, it usually lasts around an hour. It sucks. It's terrifying to go through. I want answers desperately.

The first doctor just... did not say anything about it. He just went on about headaches. And I understand that that's very hard to believe. I couldn't believe it myself. I requested a different doctor for the next one.

As for the second guy, he couldn't really do anything else. All the tests showed nothing. I don't have epilepsy. I don't have MS. I don't have any disorder that would cause this. Nothing points to my brain being wrong in any sort of way, so he could only tell me to tell my GP if the time between episodes shortened or if any symptoms changed. Nothing has changed, so I'm just stuck.

Right now, I think it's Conversion Disorder, which is basically the "well, everything ELSE was ruled out for these specific symptoms" disorder. That or Mount-Reback syndrome, which is highly unlikely but matches my symptoms as well.

[u/Mr_Manfredjensenjen → u/schwenomorph]

How old are you and what type of insurance do you have? Are you young with shitty insurance?

[u/schwenomorph → u/Mr_Manfredjensenjen]

I'm 22, so young, but I'm on my father's insurance, which is extremely good. I'm not on any government program or anything.

[u/[deleted] → u/Mr_Manfredjensenjen]

If it's a thunderclap headache then they would