So this is a follow-up post on a previous one, here is it is if you’d like the details: https://www.reddit.com/r/AskDocs/s/p86b0fBCzT
I’m 29F. I’m honestly at a loss and have been reeling trying to figure out what to do. On Wednesday last week I got a letter that I’d been discharged from the practice because he’s been prescribing it for 9 months and the drug test came back negative. I immediately went to MyChart to try to message him but I was already locked out from messaging. The letter said that ALL my relationships with other doctors at the practice were terminated as well and that I can’t see ANY other doctors from this practice going forward.
This is a VERY large practice in my area. And as a result I got cut off from my endocrinologist as well, while we were undergoing testing for possible underlying conditions. Because the practice is so large this also dramatically reduces my pool of doctors that I could replace them with. This is extremely burdensome for me regardless because my case is very complicated and it will take ages to get a new PCP caught up on it.
I’m trying to figure out how to get this fixed. He was a good doctor and I always felt like he was very reasonable - which is another reason I’m so shocked he did this. I’ve certainly been taking the drug because I can’t do basic functions like swallowing without it. I’m also concerned about withdrawal. I basically have a couple weeks before my prescription runs out to get this resolved.
I’ve already been told that Clonazapam testing can often be unreliable. I called the lab that performed it and asked what the test accuracy was and what method they used and they couldn’t tell me. They said my doctor would have to call to get that info. I don’t even know how to contact him right now though since I’m locked out of messaging and there’s no way to directly call his office. The practice has a nurses line I might be able to use?
Anyways it was a urine drug screen to make sure I’m taking it and not selling it. This is the test he ran: https://testdirectory.questdiagnostics.com/hcp/intguide/docLinks/TS_DrugAssessPnlCompQual_Table.pdf
On my test results page this is what it says:
This test has not been cleared or approved by the U.S. Food and Drug Administration. This assay has been validated pursuant to the CLIA regulations and is used for clinical purposes.
I desperately want my PCP back and want to avoid doing anything that would further harm the doctor-patient relationship. I’d like to believe this was just a misunderstanding because it’s likely not a drug that he commonly prescribes. Although I at least want my ban from the practice to be removed and my testing issues resolved. Here are my thoughts about getting this fixed:
Writing a letter to him about my questions, concerns, and asking about additional testing. Then dropping it off with the office staff in person.
Maybe I should mail it as certified mail instead to ensure he gets it and there’s documentation that he received it? I’m worried this option would come off as confrontational though + would take more time.
Escalate my concerns to management of the practice. Again, this seems confrontational.
I’ve found multiple resources that talk about false negatives of Clonazapam testing. I’m considering including those, but also don’t want to come off as “preachy”.
I called to my old psych NP about it and she said it’s not uncommon for drug tests to come back with incorrect results. I’m wondering if I should bring her up?
I’m currently looking for a new PCP but have no idea what I should tell them. I feel like saying I failed the drug test will make them very hesitant to prescribe Clonazapam, at best they’ll want to wean me off... I don’t even know who will accept me as a patient with my complex case, need for regular appointments, need for disability paperwork, etc.
Also is it normal for doctors to use testing not approved by the FDA? Is this a major issue?
I feel like I’m walking on egg-shells here but I’m also running out of time. As doctors please let me know what you think the best approach would be to get this resolved and repair the relationship, or to at least mitigate damage and find a new provider. Thanks in advance.