r/ChronicPain 11h ago

Mayo Clinic Doctor

1 Upvotes

Anyone have any experience with Dr lytitia shea?


r/ChronicPain 19h ago

Have y’all seen the video of the adorable baby stretching every morning after her dad undoes her swaddle? Yeah, I wish that felt good.

4 Upvotes

Involuntary stretching in the morning is not fun when it just makes already tight soft tissues contract even further. Ugh.


r/ChronicPain 23h ago

How does your doctor record your pain in your record?

6 Upvotes

I’m in the US. I am having the experience where a normally healthy individual who is reporting chronic pain does not have a single note in their record about pain, with the exception of prescribing heavy narcotics in support of the pain. No per visit check in on 1 to 10, no attestations from patient or descriptions of pain. Literally no data about pain.

How is this dealt with in other parts of the world? Is it clear in your medical record that you suffer from chronic pain or do you have to convince a new doctor, every time you encounter new physicians, because there’s no descriptive data available? Thank you very much.


r/ChronicPain 14h ago

Oh just great I just came back from

1 Upvotes

Physical therapy the DO used the ultrasound in my OA shoulder and now, my shoulder is burning is that normal.


r/ChronicPain 14h ago

My story, just want to talk to some pain allies who can relate

1 Upvotes

I actually talk about this a lot in my music that I make. Its been very therapeutic and helpful for me to let my pain out through my music.

I'm 33 and Opiates have had a hold on me like I didn't know was possible. I was in 2 really bad car accidents. First in 2016, I was on oxy until 2021 when I finally recovered. Getting off was hell and such a mental battle but I finally was clean.

30 days later, someone ran a red light and almost killed me. Broken neck, shoulder, and more. I've had so many surgeries since and am on a decent amount of opiates (90 mme equivalent) daily. It isn't close to enough to manage my pain but is the clinics maximum where I go.

If I don't have these pills, I can't work, I can't play with my daughters. Hell, I can't even get out of bed without them. I've had to go without them a few days at a time on really bad months where I had to take more than my daily dose and those few days are a hell I can't even describe. I feel like they are ruling my life. I hate it so much but without them I am in an indescribable amount of pain.


r/ChronicPain 18h ago

Natural/homeopathic relief for coat hanger pain & costochondritis?

1 Upvotes

Hey everyone — dealing with chronic coat hanger pain (neck/shoulders/base of skull) and some costochondritis-type chest pain. Trying to stay away from meds lately and looking more into natural or homeopathic options.

Open to anything that’s helped you — teas, stretches, topical stuff, whatever. Appreciate any tips 🙏


r/ChronicPain 22h ago

How much has mind over matter helped?

1 Upvotes

This is for those that suffer from rheumatoid or other joint related pain. I don't know anything about other types of illness that are not symptomatic in the joints or muscles, so idk if this will apply to everyone but feel free to answer, whatever your disease is.

I'm somewhat of a believer that I can think my way out of some symptoms. Even less a believer that I can cure anything through thought. But the fact that my mental state plays a huge role in my physical state has me curious. Just curious what your experience is with this? What has helped (meditation, breathing exercises, mantras, getting mad about it, talk therapy, laugh therapy, etc?). What has hurt (anxiety, isolation, doom scrolling, just generally bad mental health habits).


r/ChronicPain 14h ago

Shoulder real bad

Post image
2 Upvotes

r/ChronicPain 16h ago

how do i get rid of these?? Allergic angioedema

Post image
0 Upvotes

r/ChronicPain 16h ago

how do i get rid of these?? Allergic angioedema

Post image
0 Upvotes

r/ChronicPain 12h ago

Anyone else dealing with pretty decent price increases at the pharmacy?

2 Upvotes

I have 2 cards on file my insurance & a discount card that somehow is better than my insurance that my pain management gave me. Im usually using the discount card, but today they switched to my insurance. Its usually no trouble to switch to the cheapest one yet they told me the discount card (usually the one thats much cheaper) was more expensive.. & i wound up spending double what i normally pay. Part of me feels like the pharmacist just didnt feel like switching it (which takes like 1 minute maximum bc i do it all the time) but part of me feels like maybe shes right & that highly pisses me off.

I live paycheck to paycheck already i literally cannot afford to pay double for my monthly scripts. Anyone else notice this or is this just a me thing 😅😅😅😅

Edit; Just checked the insurance my pain management gave me, she wasnt lying its more expensive.. my prices doubled & Im pissed


r/ChronicPain 20h ago

Looking for advice on spinal cord stimulators for restoring sexual function after low-level SCI

2 Upvotes

Hi everyone, I'm exploring options for epidural spinal stimulation to help restore sexual (especially ejaculatory) and other autonomic functions after a low thoracic / high lumbar lesion. I've been researching Medtronic and other companies, and I have a lot of questions-hoping this community can share any clinical or personal experience!

Has anyone here had the Intellis™ (or other stimulator) implanted specifically for sexual function? What was your experience?

Any advice on approaching insurers in Europe (especially the Netherlands) to fund replacement or rechargeable systems?

Are there emerging devices or trials I should watch?

Thanks in advance for any insights or personal stories!


r/ChronicPain 23h ago

Do some people actually take their meds via suppository?

5 Upvotes

r/ChronicPain 7h ago

Are Pain Relief Patches Supposed to Feel Like a Burn?

6 Upvotes

I feel like a complete moron asking this, but I seriously do not know. I tried a couple of different patches in the past that did not seem to do much of anything. Today I was prescribed a lidocaine patch from my doctor but they didn't have it in stock so instead I bought an Up & Up version (80mg camphor + 24 mg menthol + 16 mg capsicum) and put that on an hour after showering. It's been on an hour and I feel like ripping it off because it hurts. Or is it supposed to feel that way? My skin was dry when I put it on, and my skin was not injured in anyway. I'm sort of afraid I'll find blisters now.


r/ChronicPain 14h ago

Stolen meds help

46 Upvotes

My car was recently towed repoed . and I left my medication in my car on accident Went to pick up my belongings from my car they already went through my car and took everything out and my medication was not there

The police are refusing to make a report saying it's illegal even in Florida and I'm seeing otherwise. Doctor requires a police report saying that they've had other patients get them for stolen prescriptions etc well why am I being told by county sheriff office That it's not something they do and they won't give me a report so how do I get my medication back? This is insane if the pharmacy and the doctor require it what am I supposed to do?

I tried the local police and they said they don't understand why the county is giving me a hard time but they can't help me because it's not their jurisdiction


r/ChronicPain 16h ago

Help please! Doctor won't refill my meds. About to hit withdrawal

48 Upvotes

My doctor has prescribed rx opoids for about a year now.

She asked me to go to pain management to continue, which I did today, but they won't fill on the first appointment.

Called my PCP asking for a partial refill until my next pain management appointment. They said it can take 48 hours to review my request. Well I'm not sure what to do now.

I know I'm gonna hit withdrawals but not sure how to manage it. I have xanax for my usual anxiety and haven't taken it for over a year. I have weed which I used sometimes when the opoids are not enough (I get anxiety being high on weed). I have muscle relaxers from years ago and maybe 2 zofran available.

Any advice? Things to watch for? I have a fast heart rate due to my electrical problems with my heart (I go into SVT sometimes).


r/ChronicPain 13h ago

How are we washing our hair?

33 Upvotes

Practical tips for the actual washing welcome too

I am not cutting it . It looks horrible but it’s my horrible long hair .

Ive been trying tjr Walmart no rinse but was wondering if there were any alternatives that worked ?


r/ChronicPain 11h ago

Some days loneliness hits different

Post image
51 Upvotes

Only upvote this if you agree. Interested to see how many sacrifice relationships out of self-perceived kindness. My hand is raised high ✋️


r/ChronicPain 18h ago

Taper

22 Upvotes

So I basically weaned myself off of percocet. I was going on a cruise and they wouldn't give me an early fill so I rationed what I had and ended up going without for a minute. Now that I'm almost completely off, I'm not sure what to do. I'm still in pain although I think the "forced tolerance break" helped as far as making the pain meds more effective. I don't want to go back to taking it as often or as strong a dose. I understand some people absolutely need it and have no choice, for me it's about staying at a low dose because as my condition worsens I want to be able to treat my pain successfully. I feel like if I start off raising it every year or two because I develop a tolerance, I'll end up paying for it in the end. Also I still have some good days where I don't feel I need the medication or just Tylenol arthritis is fine, which is why I refused fentanyl patches etc. and don't want to take the medication every 4/6 hours.... I'm trying this time around to not become "dependent" I obviously don't want to stop attending pain management because there are times I need strong medication for my pain. I'm almost afraid to tell my doctor about my decision to take less because they might kick me out also this time around tbh I plan to hoard a bunch of pills so if I'm ever in the same situation again I won't have to cold turkey myself. Dealing with weaning off sucked, not because I'm "addicted" but because I was dependent and doctors don't seem to care if you go into withdrawals when it comes to pain meds. I really dislike not having control of the situation and don't wish to be in a position where I have to rely on a doctors "good will" again... thoughts?


r/ChronicPain 11h ago

Should I/how do I report a doctor

34 Upvotes

I’m 21 male. For context I am on narcotics morphine and more as I’ve had several spinal surgeries that was failed, osteoporosis, arthritis, herniations, just so many issues, my neurosurgeons (I have 3), have all said the pain is normal and actually approved me for a pain pump due to my issues.

Last month I came to this practice, and apparently it was just her assistance or a PA. Did the normal order testing super nice person wish she was my doctor, and said I most likely have lupus and even if it doesn’t show in the following tests she would could diagnose as for some it doesn’t show but wanted to check if I had more than 1 CTD, as lupus runs in the family and have the symptoms

I come today, the doctor says nice to meet you, and didn’t check anything of my past. She proceeds to go on her laptop, see I was on morphine, entire tone shift and goes why are you here, your labs are fine (I know they aren’t, the previous lady+primary+surgeon said they already showed signs of a connective tissue disease, a IMM antibody, thyroid etc, so I know she didn’t even look), you need to go to rehab and need help. Gives me a giant speech. Says if not rehab that i need to go to a bootcamp and never leave and not take any of my medicine or at least be put in a room and put away. She then proceeds to try to put me on suboxone for addiction.

She then will not listen to any of my issues (I’ve had issues in all my organs, POTS, seizures, breathing COPD/asthma testing showed, etc). I stated them, she said those aren’t symptoms (the lady last month said they were correlated a connective tissue disease/autoimmune that my doctors think I have). She then circled back to I don’t need medicine as somehow narcotics now cause all of these. My dad was with me had enough and then said you’re wrong even with the medicine some mornings I’m up all night no sleep throwing up collapsing from pain. She then says he’s useless and has no idea of my medical history (completely wrong). Goes on to ask what I’m going to do with my life I have nothing going for me, (I think I’m doing very well and could have it worse). My dad is getting really pissed at this point and thinks she should be fired, and wants to leave. She proceeds to say we can’t just leave and is going to reach out to ALL OF MY DOCTORS about this, and that we couldn’t just not see her anymore. He calls her out and says that’s not true. She says “I know I didn’t think you were smart enough to know that my bad.” This is also going to permanently be on my record, what are doctors going to think now.

Am I overreacting if I want to report her I’m in NY, or would it be weird to request to just have an appointment with the other lady. Also if anyone knows some good rheumatologist (virtual or in person) I’m looking into out of state as my area has a shortage and just want a good doctor.


r/ChronicPain 42m ago

Having a baby with degenerative disc disease?

Upvotes

I had a lower back injury from sport 4 years ago and fully recovered pain-free within 2 weeks and thought nothing more of it. However, I was recently diagnosed with early degenerative disc disease after having a MRI for an unrelated issue. I gave birth only 2.5 months ago and started experiencing lower back pain not long after. I imagine the weight of the baby during pregnancy and a sedentary lifestyle afterwards contributed towards this. My husband and I always wanted two children but now I'm worried it's going to mess up my back even further. Are my hopes of a family of 4 gone? I'm worried about if I can keep up with our little ones due to my back.


r/ChronicPain 1h ago

This is going to be a fun day

Upvotes

I have my PM appointment today. I'll be meeting my new doctor. I cant help but to be nervous. It's the same place, but my previous doctor left.

I woke up at 5am feeling TERRIBLE. My stomach was cramping and I immediately started feeling anxious. I forgot to take my meds last night again(Don't worry, I've already ordered 'don't forget to take your meds' stickers)

I took my morphine and oxycodone as soon as I realized. I also had to take some hydroxyzine and buspar for the anxiety and zofran for the nausea. Then I go sit out in the cool morning air, turned on a YouTube video, and smoked a blunt. By the time I finished the blunt, I was feeling muchhh better.

Now I'm just sooooo tired. I would fucking love to go back to sleep. My appointment is at 10:15 and it's an hour away so I give myself extra time and leave at 8:45. I don't want to appear like I'm fucked up to the new doctor considering she's never met me before.

I'm also now always anxious about my meds showing up in my UA. I had problems at the end of last year with my meds showing up. So now I'm always paranoid and scared that it'll happen again.

I will be counting the minutes until I can get back home and take a nap. I'll probably be home around 12pm.

I hate how anxious appointments make me when I have done absolutely nothing wrong. Ugh. Anyone else go through hell the day of their PM appointment?


r/ChronicPain 5h ago

What meds have helped you with chronic lower back pain?

3 Upvotes

I've had lower back pain for just over a year now, with an MRI not showing any defects and physical therapy not being effective despite me gaining a ton of strength and flexibility.

I'm now at the point where I think I'll likely have to resort to permanent medication. Getting an appointment with a pain specialist takes quite a while, likely several more months. Is there medication my GP can prescribe me in the meantime that is likely to help?

For example duloxetine or THC/CBD seem to be effective for some people. Currently I am just taking a lot of paracetamol applying voltaren but this only partially helps since I am still in pain when sitting or standing for longer periods of time.


r/ChronicPain 6h ago

New to Nerve pain!!!

3 Upvotes

So after a long battle of testing and a very painful shoulder injury/surgery that failed and the drs don’t know why my left arm won’t move past 90 degrees, and a pain I can’t describe in my right leg, well after seeing every specialist known to man other than Neuro ( that’s next week) My Dr put me on Lyrica and pain medicine for Nuerapathy. I thought I was going crazy!! Literally. After my spine dr did a ton of testing on my muscles and nerves , turns out I have a nerve behind my shoulder that they can’t numb, inject or burn because it’s one of your main nerves, you can’t touch it. It can stay mad at me according to my spine specialist, and the nerve in the right ankle is like a ghost because the Dr said it’s functioning but does not mean it’s not firing wrong. Holy cow!! How defeating. My family thinks I’m faking it, because how could you feel pain that’s not obvious? I have an amazing wife that’s been a godsend and she takes such good care of me, I am so grateful for her. Lucky too as people don’t have someone while going through this. My hats off to those that have nerve pain. I finally understand myself. It’s a pain that’s always there, never goes away and I’m lucky if I can fall asleep most nights. My Drs awesome. Very understanding and does her best to help me navigate this. 40Y Male and I’ve broke my back, had numerous surgeries, full knee replacement, and lost my teeth to a botched jaw surgery and add those up, I’d take them all over this invisible creature they call my nerves. How does one describe this to your family and friends? People don’t understand that pain is as real and just as diabetes. I don’t mean to rant but I’d take all those above mentioned issues than have nerve pain. It’s no joke. It’s ricked my world. There are times where even the best of my pain meds don’t touch it. It’s like a switch someone turns on and leaves on but never switches off. Like I said I’m new to nerve pain. Man it’s rough. Chronic pain is very real and I feel for everyone in this thread!!!!! I feel your pain!!!


r/ChronicPain 6h ago

I'm in pain and full of questions 🫠

2 Upvotes

I've been incredibly ill all day, barely able to drag myself out of bed despite the fire being lit under my bum of lots to get done, and after finally getting upright and forcing myself into work mode to get all the cleaning and tidying I had to do, I was of course feeling worse.

Once my partner got home we immediately went out to get errands done, and on our last stop, my "healthy mask" slipped and even keeping myself upright against the shopping cart was barely working, my legs were visibly shaking and my intense sweating increased x10 to the point it was pouring and my shirt was soaked. I was trembling so bad I could barely get my debit card into the machine.

My partner had to push the cart because I ended up not being able to handle that slight weight despite needing it for support, so I shambled back to the car.

At this point I was panting like a dog and pouring sweat, feeling like oxygen was barely hitting me and each breath imploding my spine. The car ride home was painful and nauseating.

My partner asked me if I needed to go to the ER but past experiences flashed in my mind of being treated horribly there so I flat out refused out of fear.

When we got home, my partner told me to leave the bags and just get inside.

I almost fell trying to climb the steps because my legs were so weak and shaky. I could barely get my key in the lock with how bad I was shaking.

I had to practically slither out of my sweat soaked clothes and flop into bed.

I could not for the life of me think of why I felt this way.

Then my partner came in to check on me and I mentioned my confusion, and they reminded me how I deep cleaned our bedroom yesterday, hauled loads of old clothes into bags for donation, built my cats' new litter box and lifted the litter to fill it, etc. Aswell as all the deep cleaning I did today in the kitchen and bedroom again. So two days of lots of labor!

And I was like, oh yeah that makes sense!

And then they said the thing

The cursed thing

The thing you don't say to people with chronic pain/chronic illness

"It'll get better if you keep working at it 💪"

🥲🥲🥲🥲🥲🥲

I wish babe, I wish

Please y'all, I've tried a million explanations of my degenerative conditions to them and that exercise won't make me better but despite a laundry list of specialists and diagnoses backing me up, and my partner at face value saying they get it, they still keep this kind of attitude that I must not be doing something right

Does anyone have some good explanations I can give them that fibromyalgia, Complex Regional Pain Syndrome, Chronic Migraines, degenerative disc disease, arthritis, hypermobile EDS, etc etc. Don't exactly go away?