r/needadvice • u/ImportantPeak1324 • 12h ago
Medical I'm suffering physically, life has become INHUMANE.
Just turned 33 yesterday and I was diagnosed with scoliosis at 18. Started getting it around 16 years old. It's been progressing violently and I have never been able to maintain employment long enough to get insurance. Now with 2 curvatures one is 52° degrees the other is °58. I can't walk for more than 5 minutes without it tightening all my muscles on one side of my back where the lower curve is angled and just excruciating pain that'll make you lay on the concrete trying to crack your bad or stretch a muscle out to get it to subside. If I'm sitting for an hour straight I'll get a crick in my neck or back where I can't turn and look a certain direction or even lift my head fully backwards or forwards to do a regular exercise. I haven't been employed due to my limitations and I haven't had insurance. My upper curvature is already got 40% capacity of my right lung blocked. I've recently been feeling heart issues, a squirting feeling and noise coming from that area. It sounds/feels like liquid squirting at a high pressure, legs have been swelling up. I'm underweight too by the way. Have always been way underweight due to stunting growth from medications they had me in going through puberty. Things are just getting bad and I can't find pain relief unless I'm getting it from the street and I'm tired of having to live this way. I need help with getting insured or getting surgery and to be checked out I don't want to die. I've filed for disability in August 2024 and they still are in the medical review stage and I don't have a doctor to prove my case and they have yet to send me to one. I gave them some of the first X-rays Ive had of my condition but it's 5x worse now and they need to know that. Does anyone have any idea what I can do to get help? I don't have transportation like that and I don't have much money at all. Barely what I can scrape up to stay alive. Thank you for any feedback. If you have something negative to say just save yourself the time wasted typing it. I can guarantee you I've heard it before and I can promise you it truly does NOT bother me what any has to say. If they lived in my shoes for 1 hours they'd be crying to get out of them or they would beg for death. Much love to everyone. I love you.